Too many people suffer in silence with rare diseases that affect every aspect of their lives with nowhere to turn for help and support. Don’t go through this alone! We have partnered with Carion Fenn Foundation to educate and support those affected by rare diseases such as Syringomyelia, Chiari Malformation and more.
Join us for a place to share, learn, and support each other. Our monthly support group meeting will help you meet others in similar situations, gather information while supporting each other, and help you find a better path to not only live, but be a part of the community.